This is the video that started it all:
We had an in-home pediatrician visit on Friday, Aug. 17th, 24 hours after we arrived home from the hospital. We captured this video of Corbin twitching just minutes before the appointment. Corbin started this twitching Weds while we were at the hospital but it was dismissed as normal baby twitching. Our pediatrician thought otherwise and a couple of hours after her visit Corbin, my mom and I were off to Children’s.
This is what Corbin looked like after being admitted to the NICU:
The doctors felt the twitching could be benign sleep myoclonus, which was described to us as strange baby twitching, but feared it could be a sign of a serious problem. Some of the things they feared were seizures/epilepsy, brain damage or a serious illness. Corbin under went a CT scan, then had a IV inserted into his arm to draw blood, they drew urine with a catheter, the ER doctors tried to do a lumbar puncture to draw spinal fluid but after 3 attempts were unsuccessful, and then he was hooked up to an EEG. Originally we were only going to spend the night in the ER, but the more our video circulated through the doctors we were soon admitted to the NICU. There they re-did the spinal puncture and were successful and started to administer antibiotics via IV. They drew more blood, but the more blood they drew the more viscous it became (probably because Corbin hadn’t been given enough time to eat) so they had to use a scalpel to puncture the vein to get the blood. Finally he was put on a bilirubin mat and under the lights because his bilirubin count jumped from 11.1 to 17.2 in the time we were at the hospital getting checked out. I was out of my mind with worry, thank goodness I have a calm and understanding husband by my side. Most of the cultures needed 48 hours to grow, so we stayed in the NICU until Monday morning. In the end every single test came back negative, and as I thought he is perfectly healthy.
Thank you everyone for your prayers and well wishes, Corbin is home and we are enjoying being together as a family!
4 comments:
This is so scary. I'm glad he is o.k. hope it stays that way.
OH my goodness that is so scary and I would be freaking out in the hospital too! I'm glad he's ok! I've been thinking about you the past few days and how I can help (maybe this was why). I know you mom is still here but maybe once she leaves I can watch the other kids or bring you dinner or something!!! Seriously just let me know!
Nichole, we are so happy evserything is now ok with Corbin. Don't get on facebook
ofter,k so we just saw the videl and pictures. We love you all,
Love, GGD & GGM
Sorry I didn't get a chance to talk much at church yesterday! Your little guy is adorable!
I had no idea you guys were going through this! Coincidentally, Jessalyn does the EXACT same thing, when she's awake as well as sleeping. She's had a slew of appointments with doctors and a neurologist to figure out what it is. Right now, it looks like her brain is immature from being born early and not growing well. What a scary thing for you to go through! I'm glad it all turned out ok!
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